Alright GOD... Can you hear me up there!?
"Can't you give a girl a chance to BREATHE!"
I need you now more then ever. I know I need to just stay calm and carry on but my goodness this is all tooooo much.
I would like to think that any "other" person would have already flipped their shit. I would also like to think I am somewhat staying calm...
Soooo long story short I had my doctors appointment with the rheumatologist yesterday. (Yeah the fun one that made me cry two times the last appointment because she was so mean) (This time she was super sweet and nice, must have caught her on a better day :/ )
Yesterday I had a lot of things thrown at me... Super "low" potassium, Vitamin D deficiency, Fibromyalgia.... And then... Ehlers-Danlos Syndrome... WHAT!?
What Is Ehlers-Danlos Syndrome? :
Ehlers-Danlos Syndrome is a group of inherited connective tissue disorders, caused by faulty collagen (a protein in connective tissue).
Connective tissue helps support the skin, muscles, ligaments and organs of the body. People who have the defect in their connective tissue associated with Ehlers-Danlos Syndrome may have symptoms which include joint hypermobility, skin which is easily stretched and bruised, and fragile tissues. There are six major classifications of Ehlers Danlos Syndrome.
What Are The Six Types of Ehlers- Danlos Syndrome?:
Ehlers-Danlos Syndrome has been classified into six types:Hypermobility
Classical
Vascular
Kyphoscoliosis
Arthrochalasia
Dermatosparaxis
I have..." Hypermobility Type" of Ehlers-Danlos:
The primary symptom associated with the Hypermobility Type of Ehlers-Danlos Syndrome is generalized joint hypermobility which affects large and small joints. Joint subluxations and dislocations are a commonly recurring problem. Skin involvement (stretchiness, fragility, and bruising) is present but to varying degrees of severity, according to the Ehlers-Danlos Foundation. Musculoskeletal pain is present and can be debilitating.
Next step was getting more blood drawn... Checking some other things... And Brad helping me give myself shots (vitamin B12) Yikes! Yikes!
Now I ask myself... "How do you feel about all this?" I say... "I don't know, I am pretty numb with life right now."
A friend sent me this verse. I like it in sooo many ways!
Proverbs 3:5-6,8!!!
Trust in the Lord with all your heart,
and do not lean on your own understanding.
In all your ways acknowledge him,
and he will make straight your paths.
Be not wise in your own eyes;
fear the Lord, and turn away from evil.
It will be healing to your flesh
and refreshment to your bone
Trust in the Lord with all your heart,
and do not lean on your own understanding.
In all your ways acknowledge him,
and he will make straight your paths.
Be not wise in your own eyes;
fear the Lord, and turn away from evil.
It will be healing to your flesh
and refreshment to your bone
::Giving way to that familiar ill::
i'm sad to hear this news, but at least you have identified the problem. hang in there beautiful! xoxo
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